Resource Library
At OHC, we believe that families are among the most powerful teachers. As such, our learning resources are carefully curated to reflect not only professional literature, but also the invaluable insights that professionals can gain from families.
In our resource library, you’ll find essays, research papers, videos, and news articles, among other resources. We also include examples of community organizations, both local and national, that provide essential support to families who have a loved one with intellectual and developmental disabilities (IDD).
We have three types of resources: Family Insights (yellow), Professional Insights (green), and General Information (blue). Use the search bar and/or filters below to narrow your search.
Not sure where to begin? Check out our Recommended Starter Set for OHC Students.
About the resource library:
- Resource types:
- Family Insights include essays, videos, and articles written by or centering the voices of individuals and families.
- Professional Insights include research and reports written by professionals, as well as informational resources created and used by professionals.
- General Information includes items such as community organizations and other robust websites that provide helpful information for both families and professionals.
- The list of community resources we offer is not exhaustive. Our intention is to provide excellent examples that serve as a reference point for future healthcare providers, helping them understand the standards and possibilities in this field.
- Suggested resources to add to the library can be sent to OHCStudents@arcmass.org
Search text:
21 Strong
21 Strong
🌐 Website
A group of families located in Fairfield County, Connecticut, who came together because their lives have been enriched by Down syndrome.
99 Balloons
Igniter Media
🎥 Video
Emotional first-person narrative of a family's experience with a child born Trisomy-18/Edwards Syndrome.
A Daughter who is Beautiful, Perfect, and has Down Syndrome
Cedar's Story
📄 Publication
A personal essay exploring how genetic testing helped prepare a family for the birth of their child with Down syndrome.
A Wanted Child
Boston Globe Magazine
📄 Publication
A recommendation for prenatal Down syndrome testing for all pregnant women has one mother of a child with autism reflecting on her choice.
A World Without Down’s Syndrome
Clare Richards
🎥 Video
Documentary exploring potential of new screening test to eradicate the next generation of Down syndrome and the impact of prenatal testing.
AASPIRE Healthcare Toolkit
Organization for Autism Research
🌐 Website
Toolkit offers practical information, worksheets, and the ability to create a personalized healthcare accommodations report to help to make healthcare visits smoother for autistic adults.
Abused And Betrayed
NPR
📄 Publication
NPR series exploring the epidemic of people with IDD being the victims of sexual assault at a rate 7x higher than those without disabilities.
Access to Diagnosis and Treatment Services Among Latino Children With Autism Spectrum Disorders
Intellectual and Developmental Disabilities
📄 Publication
This study documents the existing disparities in ASD diagnosis & services received between Latino and non-Latino White children and investigates the mechanisms that may contribute.
Adapting to the Possibilities of Life
NPR
📄 Publication
Parent reflection on the concept of adaptation as it related to his son's autism and other diagnoses and his family's experience.
221 Resources