Resource Library
At OHC, we believe that families are among the most powerful teachers. As such, our learning resources are carefully curated to reflect not only professional literature, but also the invaluable insights that professionals can gain from families.
In our resource library, you’ll find essays, research papers, videos, and news articles, among other resources. We also include examples of community organizations, both local and national, that provide essential support to families who have a loved one with intellectual and developmental disabilities (IDD).
We have three types of resources: Family Insights (yellow), Professional Insights (green), and General Information (blue). Use the search bar and/or filters below to narrow your search.
Not sure where to begin? Check out our Recommended Starter Set for OHC Students.
About the resource library:
- Resource types:
- Family Insights include essays, videos, and articles written by or centering the voices of individuals and families.
- Professional Insights include research and reports written by professionals, as well as informational resources created and used by professionals.
- General Information includes items such as community organizations and other robust websites that provide helpful information for both families and professionals.
- The list of community resources we offer is not exhaustive. Our intention is to provide excellent examples that serve as a reference point for future healthcare providers, helping them understand the standards and possibilities in this field.
- Suggested resources to add to the library can be sent to OHCStudents@arcmass.org
Search text:
Disability Language Style Guide
Arizona State University
🌐 Website
Guide to the use of respectful and inclusive language when communicating with or talking about people with disabilities.
Disability Resources
Disability Resources
🌐 Website
Searchable directory for trusted resources related to disability services, benefits, healthcare, employment, education, accessibility, and more
Disability Service Providers Face ‘Unprecedented’ Labor Shortage
Disability Scoop
📄 Publication
Discussion of the shortage in the direct care workforce caused by decades of sub-minimum wage rates and exacerbated by the COVID-19 pandemic.
Down Syndrome Association of Connecticut
DS ACT
🌐 Website
CT organization to encourage intentionally inclusive communities and provide resources and support to individuals who live with Down syndrome and their advocates.
Down Syndrome for New Parents: What to Know During the First Year
Mass General Brigham
🎥 Video
Dr. Brian Skotko explains what parents can expect during the first year of raising a child with Down syndrome.
Down Syndrome: Preferred Language Guide
National Down Syndrome Society
📄 Publication
Guidelines for preferred language when speaking to and about individuals with Down syndrome, from the National Down Syndrome Society.
Down Syndrome: Signs, Symptoms, Diagnosis, and Treatment
Mass General Brigham
🎥 Video
Dr. Brian Skotko provides a comprehensive overview of Down Syndrome, including co-occurring conditions, treatments, and best supports for families.
DSC2U – Down Syndrome Clinic to You
Massachusetts General Hospital
🌐 Website
Brings the best information about Down syndrome to providers and families around the globe. From clinical and research teams at MGH and Harvard.
DSM Update Tweaks Criteria For Autism, Intellectual Disability
Disability Scoop
🌐 Website
Summary & explanation of the 2022 updates to the DSM criteria regarding autism and intellectual disability.
221 Resources