Resource Library

At OHC, we believe that families are among the most powerful teachers. As such, our learning resources are carefully curated to reflect not only professional literature, but also the invaluable insights that professionals can gain from families.
 

In our resource library, you’ll find essays, research papers, videos, and news articles, among other resources. We also include examples of community organizations, both local and national, that provide essential support to families who have a loved one with intellectual and developmental disabilities (IDD).

We have three types of resources: Family Insights (yellow), Professional Insights (green), and General Information (blue). Use the search bar and/or filters below to narrow your search.

 
Not sure where to begin? Check out our Recommended Starter Set for OHC Students.
  • Resource types:
    • Family Insights include essays, videos, and articles written by or centering the voices of individuals and families.
    • Professional Insights include research and reports written by professionals, as well as informational resources created and used by professionals.
    • General Information includes items such as community organizations and other robust websites that provide helpful information for both families and professionals.
  • The list of community resources we offer is not exhaustive. Our intention is to provide excellent examples that serve as a reference point for future healthcare providers, helping them understand the standards and possibilities in this field.
  • Suggested resources to add to the library can be sent to OHCStudents@arcmass.org

Search text:

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CARE Down Syndrome

National Down Syndrome Society
🌐 Website
Clinical Awareness, Resources, and Education for health care professionals caring for adults with Down syndrome.

Caring For Kevin: An Autistic Man, An Exceptional Doctor, A Life Renewed

WBUR
📄 Publication
Powerful example of the challenges, obstacles and ultimately life-changing benefit of access to healthcare that would be routine for people without disabilities.

Champions of Inclusion

TASH Connections newsletter
📄 Publication
The principal of Patrick O'Hearn Elementary School in Boston shares what it means to be a champion of inclusion.

Children of color with autism face disparities of care and isolation

PBS News Hour
📄 Publication
Video and transcript of a news piece featuring a family whose 29 year old son has autism.

Choosing Life With Down Syndrome

Slate
📄 Publication
Discussion of the impact of prenatal testing on termination decisions related to Down symdrome and the interplay with abortion legistation.

Chromosome 9p Minus Network

Chromosome 9p Minus Network
🌐 Website
Information, research, and support for families impacted by 9p Deletion Syndrome.

Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination

Canadian Family Physician
📄 Publication
Review of processes that affect the health of people with IDD and suggested practical tips and strategies.

Connecticut Birth to Three

Connecticut Office of Early Childhood
🌐 Website
The Birth to Three System contracts with early intervention programs across the state of Connecticut that support families with children who have delays or disabilities.

Connecticut Family Support Network

CTFSN
🌐 Website
Community of families, self advocates, providers and CT citizens who advocate for acceptance, inclusion, and equality
221 Resources

How to Use the Resource Page

The resource page has three different modes of looking finding the resource(s) you are interested in:

  1. keyword or phrase
  2. resource type
  3. topical area

If the results are empty, change your criteria to be less restrictive and if the result are too many, add more qualifications to your selection. Also, please note the keyword search and resource/topical searches are mutually exclusive.

Keyword or Phrase Search

Enter a key word or phrase. If there are no results, use fewer, different or more general key words. Please note that phrases need to be an exact match.

Resource Type Search

Select two or more research types. The research type buttons are color-coded to match the resulting cards. If there are no results, select other research types or chose the "All" option.

Topical Area Search

Select two or more topics to restrict your search. If there are no results, select fewer topics or chose the "All" option.