Resource Library
At OHC, we believe that families are among the most powerful teachers. As such, our learning resources are carefully curated to reflect not only professional literature, but also the invaluable insights that professionals can gain from families.
In our resource library, you’ll find essays, research papers, videos, and news articles, among other resources. We also include examples of community organizations, both local and national, that provide essential support to families who have a loved one with intellectual and developmental disabilities (IDD).
We have three types of resources: Family Insights (yellow), Professional Insights (green), and General Information (blue). Use the search bar and/or filters below to narrow your search.
Not sure where to begin? Check out our Recommended Starter Set for OHC Students.
About the resource library:
- Resource types:
- Family Insights include essays, videos, and articles written by or centering the voices of individuals and families.
- Professional Insights include research and reports written by professionals, as well as informational resources created and used by professionals.
- General Information includes items such as community organizations and other robust websites that provide helpful information for both families and professionals.
- The list of community resources we offer is not exhaustive. Our intention is to provide excellent examples that serve as a reference point for future healthcare providers, helping them understand the standards and possibilities in this field.
- Suggested resources to add to the library can be sent to OHCStudents@arcmass.org
Search text:
Autistic Voices
PBS
🎥 Video
What is it like to be autistic? Hear straight from the source, as people across the spectrum share their thoughts, feelings and experiences.
Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review
Royal College of General Practictioners
📄 Publication
Investigation of the barriers and facilitators reported by individuals with IDD, autism, or both, and/or their carers, to accessing and utilizing health care.
Barriers to Health Care Among People With Disabilities Who are Members of Underserved Racial/Ethnic Groups A Scoping Review of the Literature
Ovid
📄 Publication
Review of studies focused on barriers to accessing healthcare for those with disabilities including uninsurance, language, low education level, and no usual source of care.
Barry Prizant: Advice for Parents and Teachers
Not an Autism Mom
🎥 Video
A short interview with the author of "Uniquely Human," where he advises on the importance of getting kids out into the world with the right
Ben’s Story
The Boston Globe
📄 Publication
It took her more than a decade, but once she found a place that recognized her son's unique challenges, Samantha Battis watched him flourish and
Best practice guidelines for communicating to parents the diagnosis of disability
Early Human Development
📄 Publication
Adaptation and explanation of the SPIKES protocol for communicating disability diagnoses to parents.
Black And Latino Children Are Often Overlooked When It Comes To Autism
NPR
📄 Publication
Example of the disparities in timeliness of autism diagnosis in Black and Latino children and the reasons.
Boston Children’s Hospital Down Syndrome Program
BCH
🌐 Website
The Down Syndrome Program offers specialized services for children with Down syndrome and their families and work closely with medical specialists, community physicians and educators.
Breathing Easy: A Trach at Home
Complex Child E-Magazine
📄 Publication
A personal essay by an OHC family about their medical journey with their daughter who has 22q11.2 Deletion Syndrome.
221 Resources