Resource Library
At OHC, we believe that families are among the most powerful teachers. As such, our learning resources are carefully curated to reflect not only professional literature, but also the invaluable insights that professionals can gain from families.
In our resource library, you’ll find essays, research papers, videos, and news articles, among other resources. We also include examples of community organizations, both local and national, that provide essential support to families who have a loved one with intellectual and developmental disabilities (IDD).
We have three types of resources: Family Insights (yellow), Professional Insights (green), and General Information (blue). Use the search bar and/or filters below to narrow your search.
Not sure where to begin? Check out our Recommended Starter Set for OHC Students.
About the resource library:
- Resource types:
- Family Insights include essays, videos, and articles written by or centering the voices of individuals and families.
- Professional Insights include research and reports written by professionals, as well as informational resources created and used by professionals.
- General Information includes items such as community organizations and other robust websites that provide helpful information for both families and professionals.
- The list of community resources we offer is not exhaustive. Our intention is to provide excellent examples that serve as a reference point for future healthcare providers, helping them understand the standards and possibilities in this field.
- Suggested resources to add to the library can be sent to OHCStudents@arcmass.org
Search text:
Education: Joint position statement of AAIDD and The Arc
American Association on Intellectual and Developmental Disabilities
📄 Publication
Statement on the receipt of a free appropriate public education for children with IDD.
Effect of the COVID-19 pandemic on the mental health of carers of people with intellectual disabilities
Journal of Applied Research in Intellectual Disabilities
📄 Publication
Important article raising awareness of the high level of unmet mental health needs among carers of people with ID.
Ehlers-Danlos Syndrome and Autism
Neuro Pride Ireland
🎥 Video
Evie, an autistic young woman with Ehlers-Danlos Syndrome (EDS), discusses the link between hypermobile EDS and autism.
Emergency Room IDD Stabilization Protocol
Tennessee Department of IDD
📄 Publication
A quick tip sheet including environmental concerns for treating a patient with IDD in the ER.
Engaging Students With Learning Differences Early On
PBS
📄 Publication
Example of one Boston school successfully reducing the odds that a student with learning disabilities may drop out.
Engaging with and navigating limbo: Lived experiences of siblings of adults with autism spectrum disorders
Journal of Applied Research in Intellectual Disabilities
📄 Publication
Using interpretative phenomenological analysis, this study explored subjective experiences of eight siblings of adults with ASD and co-occurring intellectual disability.
Exploring issues relating to disability cultural competence among practicing physicians
Disability and Health Journal
📄 Publication
An expansive analysis of physicians’ cultural competency when it comes to disability. Recommendations for improving understanding of disability are also explored.
Exploring the experiences of siblings of adults with IDD during the COVID-19 pandemic
Journal of Intellectual Disability Research
📄 Publication
The COVID-19 pandemic disrupted daily routines and supports for many adults with IDD, increasing reliance on family caregivers. A look at the impact on siblings.
Family perspectives about Down syndrome
American Journal of Medical Genetics: Part A
📄 Publication
Survey-based study with data demonstrating that positive themes tend to dominate within modern-day families who have members with DS.
221 Resources