We are always updating to bring you teaching perspectives from families. Here are some extra resources and perspectives for you :
A multi-part video symposium from clinicians at Boston Children’s Hospital who cover a wide range of topics, including communication of pain and illness, treating children with autism who have GI issues, and more.
Created by Dr. Brian Skotko, MD, MPP, and the clinical and research teams from the Down Syndrome Program and Lab of Computer Science at Massachusetts General Hospital to bring the best information about Down syndrome to providers and families around the globe.
Autism rates in girls have steadily risen in recent years. But as more women are diagnosed in adulthood, some wonder how many girls are still missed.
Provides essential tools and support to help survivors of domestic violence so they can live their lives free of abuse.
AASPIRE Healthcare Toolkit: Primary Care Resources for Adults on the Autism Spectrum and their Primary Care Providers
Robust website containing information and worksheets for adults on the autism spectrum, supporters, and healthcare providers. The AASPIRE Healthcare Toolkit was created as part of an ongoing research project by the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) to help improve healthcare access and quality for adults on the autism spectrum.
Negative biases and inaccurate assumptions about the quality of life of a person with a disability are pervasive in US society and can result in the devaluation and disparate treatment of people with disabilities. Healthcare providers are not exempt from these deficit-based perspectives, and when they influence a critical care decision, the results can be a deadly form of discrimination.
Francesca Happe is Professor of Cognitive Neuroscience at King’s College London. See also Happe’s 30-minute BBC interview on the abilities and assets of people with autism and aspects of her research, including her work on recognizing autism in girls. Among her books is Girls and Autism, co-authored by Happe, 2019.
An engaging community conversation with African American autistic adults, parents, advocates, and experts on navigating within the I/DD community and systems.
Healing Narratives Art Exhibit Through art, patients with I/DD express their own healthcare experiences through a project by Healing Narratives, a program of the Partnership for People with Disabilities.
