Genetic Testing in Neurodevelopmental Disorders
Savatt, J.M., & Myers, S.M. (2021, January 18). Genetic Testing in Neurodevelopmental Disorders. Frontiers. Provides a review of the benefits of genetic testing in patients with neurodevelopmental disorders and describes the three major testing modalities and their yields.
Prenatal Preparation: Action and Results (The PREPARE study)
The PREPARE study, conducted by The Prenatal Information Research Consortium. Key findings, publications, and presentations from PREPARE: an interview study of stakeholders (patient advocacy groups, parents, and clinicians) to gain and understanding of the meaning of prenatal preparation after receiving a genetic result.
Sibling Relationships in IDD Community
this is a journal article – hyperlink and blurb
Early Autism Diagnosis is Key
this is a video on YouTube – hyperlink and short blurb
When Your Sibling is Autistic
article from a medical journal – this will be hyperlink and short blurb?
Intelligent Lives
Intelligent Lives stars three pioneering young adults with intellectual disabilities—Micah, Naieer, and Naomie—who challenge perceptions of intelligence as they navigate high school, college, and the workforce. Award-winning actor and narrator Chris Cooper contextualizes the lives of these central characters through the emotional and personal story of his son Jesse as the film unpacks the shameful and ongoing track record of intelligence testing in the United States.
Normie: The Illusion of Normal, the Beauty of Love
When Annemarie looks in the mirror, she sees Down syndrome. She hates it. To her, the diagnosis is a giant barricade keeping her from the independence and intimacy she desperately desires. She embarks on a journey of self-discovery as she tries to understand what it means to be normal.
